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E-Patient Counseling Trial E-PACO: Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
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A study protocol for individualized prognostic counselling in the palliative phase.
Boyd Noël van den Besselaar1, A Sewnaik2, M C Dorr2
1Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus MC Cancer Institute, University Medical Centre Rotterdam, Dr. Molewaterplein 40, Rotterdam, 3015 GD, The Netherlands. b.vandenbesselaar@erasmusmc.nl.
BMC Palliative Care
|January 10, 2025
Summary
This study evaluates OncologIQ Palliative, a tool to improve prognostic information for head and neck cancer patients in palliative care. It aims to enhance patient-centered counseling and decision-making during end-of-life care.
Area of Science:
- Oncology
- Palliative Care
- Health Services Research
Background:
- Head and neck squamous cell cancer (HNSCC) palliative phase presents significant prognostic information needs.
- Accurate life expectancy prediction is challenging, with a tendency for overestimation by clinicians and patients.
- The OncologIQ Palliative prognostic model was developed to address these challenges.
Purpose of the Study:
- To assess the clinical impact of the OncologIQ Palliative model in patient counseling.
- To evaluate its effect on decisional conflict and satisfaction with the decision-making process.
- To explore its influence on palliative treatment, survival, and quality of life.
Main Methods:
- A prospective sequential cohort study comparing counseling with and without the OncologIQ Palliative model.
- Quantitative primary outcomes: decisional conflict and satisfaction.
- Qualitative exploration of patient perspectives on decision-making and care planning via interviews.
Main Results:
- Anticipated shift towards patient-centered counseling with personalized prognostic information.
- Potential for reduced decisional conflict and improved preparedness for patients.
- Exploration of impact on palliative treatment, survival, and quality of life.
Conclusions:
- Personalized prognostic information via OncologIQ Palliative can enhance end-of-life discussions and care planning.
- Improved decision-making support for HNSCC patients in the palliative phase.
- Potential to improve quality of life and care for patients nearing end-of-life.
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