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A study protocol for individualized prognostic counselling in the palliative phase.

Boyd Noël van den Besselaar1, A Sewnaik2, M C Dorr2

  • 1Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus MC Cancer Institute, University Medical Centre Rotterdam, Dr. Molewaterplein 40, Rotterdam, 3015 GD, The Netherlands. b.vandenbesselaar@erasmusmc.nl.

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This study evaluates OncologIQ Palliative, a tool to improve prognostic information for head and neck cancer patients in palliative care. It aims to enhance patient-centered counseling and decision-making during end-of-life care.

Keywords:
Head and neck squamous cell cancerPalliative careProactive care planningPrognostic counsellingPrognostic model

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Area of Science:

  • Oncology
  • Palliative Care
  • Health Services Research

Background:

  • Head and neck squamous cell cancer (HNSCC) palliative phase presents significant prognostic information needs.
  • Accurate life expectancy prediction is challenging, with a tendency for overestimation by clinicians and patients.
  • The OncologIQ Palliative prognostic model was developed to address these challenges.

Purpose of the Study:

  • To assess the clinical impact of the OncologIQ Palliative model in patient counseling.
  • To evaluate its effect on decisional conflict and satisfaction with the decision-making process.
  • To explore its influence on palliative treatment, survival, and quality of life.

Main Methods:

  • A prospective sequential cohort study comparing counseling with and without the OncologIQ Palliative model.
  • Quantitative primary outcomes: decisional conflict and satisfaction.
  • Qualitative exploration of patient perspectives on decision-making and care planning via interviews.

Main Results:

  • Anticipated shift towards patient-centered counseling with personalized prognostic information.
  • Potential for reduced decisional conflict and improved preparedness for patients.
  • Exploration of impact on palliative treatment, survival, and quality of life.

Conclusions:

  • Personalized prognostic information via OncologIQ Palliative can enhance end-of-life discussions and care planning.
  • Improved decision-making support for HNSCC patients in the palliative phase.
  • Potential to improve quality of life and care for patients nearing end-of-life.