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Updated: Jun 1, 2025

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
Aboriginal Community Controlled Organisations Leading the Way in Child Health Research
Anita Pickard1,2, Thomas Stubbs3,4, Emily Carter5
1Faculty of Medicine and Health, School of Public Health, The University of Sydney, Sydney, NSW, Australia. anita.pickard@sydney.edu.au.
None:
Historically, Aboriginal and Torres Strait Islander research in Australia has adhered to Western research paradigms and contributed to the adverse impacts of colonisation. However, recent developments driven by Aboriginal and Torres Strait Islander people and scholars, and development of ethical guidelines for research, have promoted a more inclusive and collaborative research landscape. In this study, published papers and internal documents arising from a long-term partnership between Marninwarntikura Women's Resource Centre (MWRC) and the University of Sydney (USYD) from 2009 to 2023 were analysed using the Aboriginal and Torres Strait Islander Quality Appraisal Tool and consultations with project partners. Every project had Aboriginal and Torres Strait Islander governance, leadership, and inclusive consultation; was driven by community-identified priorities, built local capacity, and benefitted the community. There was an increase in the use of Indigenous research paradigms and data/intellectual property (IP) agreements over time, reflecting responsiveness to community leadership. This partnership exemplifies community-driven, co-designed, Aboriginal-led health research and serves as a model for effective collaboration with Aboriginal and Torres Strait Islander communities.
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