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Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study
Marília Costa Flora1,2, Luísa Barros3, Maria Isabel Dias da Costa Malheiro1,4
1Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), University of Lisbon, Nursing School of Lisbon, 1600-190 Lisbon, Portugal.
Nursing Reports (Pavia, Italy)
|January 24, 2025
Summary
Adolescents with type 1 diabetes benefit from peer-led education programs. Expert patients serve as role models, enhancing self-management skills and knowledge for both participants and mentors.
Area of Science:
- Pediatrics
- Endocrinology
- Health Education
Background:
- Adolescents with type 1 diabetes (T1D) encounter significant self-management challenges.
- Developing effective self-management skills is crucial for this population.
- Existing education programs require evaluation from participant perspectives.
Purpose of the Study:
- To examine adolescents' perspectives on a T1D self-management education program.
- To understand the role and impact of expert patients within the program.
- To evaluate the program's effectiveness in enhancing T1D self-management.
Main Methods:
- Focus group interviews with 32 adolescents with T1D and 6 expert patients.
- Thematic and content analysis of interview data using NVIVO software.
- Qualitative research methodology to explore participant experiences.
Main Results:
- Expert patient roles were positively perceived, emphasizing responsibility and role modeling.
- Program evaluation highlighted benefits of peer-to-peer sharing and educational sessions.
- Participants reported increased knowledge of T1D and improved management strategies.
- Expert patients also experienced enhanced self-management and a sense of responsibility.
Conclusions:
- The program functions as a valuable learning tool for adolescents with T1D.
- Expert patient role modeling significantly facilitates learning and commitment.
- Peer-to-peer interaction in a camp setting is a beneficial component of diabetes education.
- The study underscores the importance of mentorship in pediatric diabetes self-management.
Keywords:
adolescentdiabetes mellitusfocus groupsnursing researchprogram evaluationself-managementtype 1More Related Videos
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