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Updated: May 30, 2025
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Systematic Hearing Performance Evaluation Process for Adolescents with Cochlear Implantation at Early Ages
Published on: March 24, 2023
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Understanding and Improving Pediatric Hearing Care Navigation: A Human-Centered Design Approach
Neema Rashidi1,2,3, Michael M Lindeborg3, Jihyun Stephans3
1School of Medicine, University of California, San Francisco, San Francisco, California, USA.
Summary
Navigating hearing care for deaf children is challenging due to family and system barriers. A patient navigator role is proposed to improve hearing health equity and the care-seeking experience.
Area of Science:
- Pediatric audiology and hearing healthcare.
- Human-centered design in healthcare.
- Health equity for children with hearing loss.
Background:
- Hearing care pathways for deaf or hard-of-hearing children are complex.
- Stakeholder experiences highlight significant navigation challenges.
- Delays in diagnosis and intervention impact long-term outcomes.
Purpose of the Study:
- To explore stakeholder experiences in pediatric hearing care pathways.
- To design a patient navigator (PN) role using human-centered design.
- To improve hearing health equity for deaf or hard-of-hearing children.
Main Methods:
- Qualitative, prospective, observational study.
- Utilized Empathize, Define, and Ideate phases of Human-Centered Design.
- Interviews with 12 hearing care providers and 10 parents across the US.
Main Results:
- Identified 3 key themes: Intrinsic Barriers (e.g., grieving), Extrinsic Barriers (navigating care pathways), and Areas of Opportunity.
- Stakeholders suggested connecting new parents with mentor families.
- Insights informed the design of a patient navigator role.
Conclusions:
- The hearing care pathway is inherently difficult to navigate.
- Intrinsic family barriers and extrinsic system challenges exacerbate care delays.
- A patient navigator role is a potential solution to improve the care experience and equity.
Keywords:
care coordinationhealth care disparitieshuman‐centered designpatient navigationpatient navigatorpediatric hearing lossMore Related Videos
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