Differences in Inpatient Palliative Care Consultation During the Terminal Admission for Pediatric Neuro-Oncology

Chinwe S Udemgba1, Brett K Palama2, Wendy Darlington2,3

  • 1Pritzker School of Medicine, University of Chicago, Chicago, IL, USA.

Insights

Palliative care consultations for pediatric neuro-oncology patients are linked to less intensive hospital care, including fewer intensive care unit admissions and mechanical ventilation. This highlights the importance of palliative care for terminally ill children.

Area of Science:

  • Pediatric Oncology
  • Palliative Care
  • Health Services Research

Background:

  • Pediatric neuro-oncology patients face high mortality rates.
  • The role of palliative care in end-of-life care for these children is crucial.
  • Understanding disparities in palliative care access is essential.

Purpose of the Study:

  • To examine the relationship between palliative care consultation and the intensity of in-hospital care for pediatric neuro-oncology patients.
  • To determine if racial and ethnic differences are associated with palliative care consultations during terminal admissions.

Main Methods:

  • Retrospective observational study using the Pediatric Health Information System (PHIS) database.
  • Included patients under 18 with a brain tumor diagnosis and terminal admission between 2017-2021.
  • Analyzed palliative care consultation rates and intensity of care metrics.

Main Results:

  • 63% of eligible patients received an inpatient palliative care consultation.
  • No significant differences in consultation rates across racial groups.
  • Hispanic patients had a ~10% higher consultation rate than non-Hispanic patients.
  • Palliative care consultation was associated with lower rates of PICU admission, mechanical ventilation, and TPN use.

Conclusions:

  • Palliative care consultation in pediatric neuro-oncology is associated with reduced intensity of end-of-life hospital care.
  • Palliative care may support enhanced decision-making for patients and families.
  • Integrating palliative care is vital for terminally ill children with neuro-oncological diagnoses.

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