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Utility and Efficacy of a Virtual Normal Pressure Hydrocephalus Support Group
Judy Pham1, Christopher Nguyen1, Gianna Fote1
1Department of Neurological Surgery, University of California, Irvine Medical Center, Orange, USA.
World Neurosurgery
|February 5, 2025
Summary
Virtual support groups effectively educated and supported patients with normal pressure hydrocephalus (NPH). These online sessions improved knowledge, coping skills, and emotional well-being for NPH patients and their families.
Area of Science:
- Neurology
- Neurodegenerative Diseases
- Patient Support
Background:
- Normal pressure hydrocephalus (NPH) is a neurodegenerative condition.
- Previous research by our team confirmed the effectiveness of in-person NPH support groups.
Purpose of the Study:
- To evaluate the educational benefits and efficacy of a virtual support group for NPH patients.
- To assess the impact of online peer and professional support on patient well-being.
Main Methods:
- Conducted monthly virtual meetings from July 2022 to June 2023.
- Included physician-led presentations, Q&A, group discussions, and participant surveys.
- Gathered data on demographics, education, emotional well-being, and satisfaction with the virtual format.
Main Results:
- 343 participants attended 11 virtual meetings over one year.
- Average ratings for knowledge, self-efficacy, and satisfaction were high (4.15-4.60/5).
- Patients reported enhanced education, coping, communication, and emotional support.
Conclusions:
- Virtual, physician-led support groups are effective for NPH patients and their families.
- Improved knowledge and access to resources can enhance patient health outcomes.
- High participant satisfaction and continued interest indicate the value of virtual support.
