Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Ethics in Research01:56

Ethics in Research

22.9K
Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
22.9K
Surveys02:16

Surveys

14.7K
Often, psychologists develop surveys as a means of gathering data. Surveys are lists of questions to be answered by research participants, and can be delivered as paper-and-pencil questionnaires, administered electronically, or conducted verbally. Generally, the survey itself can be completed in a short time, and the ease of administering a survey makes it easy to collect data from a large number of people.
14.7K
Longitudinal Research02:20

Longitudinal Research

11.8K
Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
11.8K
Archival Research01:40

Archival Research

15.9K
Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
15.9K
Randomized Experiments01:13

Randomized Experiments

6.7K
The randomization process involves assigning study participants randomly to experimental or control groups based on their probability of being equally assigned. Randomization is meant to eliminate selection bias and balance known and unknown confounding factors so that the control group is similar to the treatment group as much as possible. A computer program and a random number generator can be used to assign participants to groups in a way that minimizes bias.
Simple randomization
Simple...
6.7K

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Characterization of Electrophysiological and Transcriptomic Alterations in Patient-Derived Neurons from CHAMP1 Syndrome.

bioRxiv : the preprint server for biology·2026
Same author

Effects of Acoramidis on Kidney Function in Transthyretin Amyloid Cardiomyopathy.

Circulation. Heart failure·2026
Same author

Who declines genetic counseling? An assessment of genetic counseling declination among individuals participating in a population-wide genomic screening program.

Patient education and counseling·2026
Same author

Acoramidis for the management of transthyretin amyloid cardiomyopathy: Clinical evidence and implications for pharmacist-led care.

American journal of health-system pharmacy : AJHP : official journal of the American Society of Health-System Pharmacists·2026
Same author

Differential Transthyretin Stabilization in Patients With Wild Type and Variant Transthyretin Amyloidosis.

JACC. CardioOncology·2026
Same author

Efficacy of Acoramidis in Transthyretin Amyloid Cardiomyopathy With and Without Atrial Fibrillation: Results From ATTRibute-CM.

Journal of cardiac failure·2026
Same journal

Flexible outlier detection in multicenter clinical trials.

Journal of clinical and translational science·2026
Same journal

Research on the road: Partnering with community emergency medical services to expand access to clinical trials.

Journal of clinical and translational science·2026
Same journal

Mapping the landscape of dissemination and implementation science across the CTSA consortium: A multi-domain environmental website scan.

Journal of clinical and translational science·2026
Same journal

Are you still engaged? Leveraging the LMS to support engagement in asynchronous courses.

Journal of clinical and translational science·2026
Same journal

Prediction of α-synuclein seed amplification assay positivity in remotely followed <i>LRRK2</i> G2019S carriers using a validated data-driven model.

Journal of clinical and translational science·2026
Same journal

Embracing complexity: An opportunity for developmental evaluation.

Journal of clinical and translational science·2026
See all related articles

Related Experiment Video

Updated: May 29, 2025

Setup of Consumer Wearable Devices for Exposure and Health Monitoring in Population Studies
15:00

Setup of Consumer Wearable Devices for Exposure and Health Monitoring in Population Studies

Published on: February 3, 2023

2.4K

Using technology to increase reach and optimize consent experience for a large-scale research program.

Emma Coen1, Daniel P Judge2, Samantha Norman3

  • 1Department of Public Health Sciences, Medical University of South Carolina, Charleston, SC, USA.

Journal of Clinical and Translational Science
|February 6, 2025
PubMed
Summary
This summary is machine-generated.

Improving the research consent process using enhanced consent (EC) methods did not significantly differ from standard consent (SC) in participant decision-making, knowledge, or satisfaction. Both approaches ensured robust participant understanding and contentment in genomic screening initiatives.

Keywords:
Consentenhanced consentlarge-scale research programspopulation screeningrecruitment

More Related Videos

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
11:21

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

Published on: July 27, 2018

8.2K
Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring
06:32

Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring

Published on: July 14, 2023

1.2K

Related Experiment Videos

Last Updated: May 29, 2025

Setup of Consumer Wearable Devices for Exposure and Health Monitoring in Population Studies
15:00

Setup of Consumer Wearable Devices for Exposure and Health Monitoring in Population Studies

Published on: February 3, 2023

2.4K
Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
11:21

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

Published on: July 27, 2018

8.2K
Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring
06:32

Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring

Published on: July 14, 2023

1.2K

Area of Science:

  • Genomic Medicine
  • Bioethics
  • Informed Consent

Background:

  • The informed consent process for research studies can be complex and burdensome for participants.
  • Improving participant understanding and satisfaction with consent is crucial for ethical research conduct.
  • Population-based genomic screening initiatives require efficient and effective consent procedures.

Purpose of the Study:

  • To enhance the participant consent experience in the In Our DNA SC program, a population-based genomic screening initiative.
  • To evaluate the impact of an enhanced consent (EC) procedure compared to standard consent (SC) on participant decision-making, study knowledge, and satisfaction.
  • To assess participant preferences and identify areas for future consent improvements.

Main Methods:

  • A pragmatic study comparing two consent procedures: standard consent (SC) using a PDF document and enhanced consent (EC) with pictographs and true/false questions.
  • Data collected from 109 participants in the SC group and 96 in the EC group.
  • Assessment of decision-making control, study knowledge, satisfaction, and time to consent.

Main Results:

  • Both standard consent and enhanced consent procedures resulted in strong decision-making control and high levels of participant knowledge and satisfaction.
  • No statistically significant differences were observed between the SC and EC groups in key outcomes.
  • The enhanced consent experience required a longer completion time for participants.

Conclusions:

  • While the enhanced consent method did not yield statistically significant improvements over standard consent, both approaches effectively supported participant understanding and satisfaction.
  • Further research is needed to explore participant preferences for receiving consent information, including multimedia formats like videos.
  • Future iterations of the consent process should consider incorporating diverse modalities and language options, such as a Spanish version.