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Birth defects surveillance: Working together to advance science
Marilyn L Browne1,2, Sarah C Fisher1, Wendy N Nembhard3
1Birth Defects Registry, New York State Department of Health, Albany, New York, USA.
Insights
The National Birth Defects Prevention Network (NBDPN) annual special issue advances birth defect surveillance and epidemiology. This year features updated prevalence data and research highlighting the power of collaborative data pooling for public health.
Area of Science:
- Public Health
- Epidemiology
- Birth Defects Research
Background:
- The National Birth Defects Prevention Network (NBDPN) collaborates with the CDC to publish annual special issues of Birth Defects Research.
- These issues focus on birth defect surveillance, epidemiology, and public health practice.
- The goal is to advance the field using surveillance data for research and methods improvement.
Abstract:
Since 2000, the National Birth Defects Prevention Network (NBDPN), in collaboration with the US National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention, has provided a special issue of Birth Defects Research focused on advancing the field of birth defects surveillance, epidemiology, and public health practice. The annual NBDPN special issue consists of contributed manuscripts using birth defects surveillance data for epidemiologic research or for improving birth defects surveillance methods. This year, our special issue includes updated national prevalence estimates for selected major birth defects, seven original research papers, and an invited editorial. Several of the accepted manuscripts highlight collaborative efforts between birth defects surveillance systems across the country: through the NBDPN, the National Birth Defects Prevention Study, and the Muscular Dystrophy Surveillance, Tracking, and Research Network. These studies offer examples of the power of pooling data and leveraging resources to conduct high-quality birth defects research.
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