Related Experiment Video
Updated: May 28, 2025
Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
"We Need To Be at the Table": Collaboration with Lived Experts
Involving individuals with lived experience (LE) in research, particularly on aging and homelessness, requires digital support and fair compensation. This approach enhances knowledge mobilization for marginalized groups.
Area of Science:
- Social Sciences
- Public Health
- Gerontology
Background:
- Growing recognition of lived experience (LE) as valuable in research.
- Increased engagement of individuals affected by social/medical conditions in studies.
Purpose of the Study:
- To present a model of a LE advisory group co-conceptualizing and executing a knowledge mobilization project.
- Focus on aging and homelessness in three Canadian cities.
Main Methods:
- Establishment of a LE advisory group.
- Determination of group priorities and objectives.
- Community engagement via webinars and in-person events.
Main Results:
- Digital support is crucial for including advisors with experiences of homelessness.
- Providing honoraria recognizes advisors' time and contributions.
- Consistent meeting schedules and time for personal updates enhance participation.
Conclusions:
- The LE advisory group model is replicable for research on homelessness, aging, and marginalized populations.
- This approach can enhance the impact of research and knowledge mobilization efforts.
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