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Perceptions in 3.6 Million Web-Based Posts of Online Communities on the Use of Cancer Immunotherapy: Data Mining
Xingyue Wu1, Chun Sing Lam1, Ka Ho Hui1
1School of Pharmacy, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong SAR, China.
Patients express generally positive perceptions of cancer immunotherapy online, focusing on hope, effectiveness, and lifestyle impacts. This analysis of social media data aids physician-patient communication and decision-making regarding this crucial treatment.
Area of Science:
- Oncology
- Computational Linguistics
- Social Media Analysis
Background:
- Immunotherapy is a transformative cancer treatment.
- Patients increasingly use online platforms for support and information sharing.
- Limited research exists on patient perceptions of immunotherapy using social media data.
Purpose of the Study:
- To employ BERTopic modeling to analyze online cancer community perceptions of immunotherapy.
- To identify key themes and sentiments surrounding immunotherapy discussions.
Main Methods:
- Processed 3.6 million social media posts from various online platforms (Facebook, Twitter, Reddit, forums).
- Utilized natural language processing and BERTopic for topic modeling and sentiment analysis.
- Conducted thematic analysis on identified topics to understand patient perspectives.
Main Results:
- BERTopic identified 14 distinct topics related to immunotherapy perceptions.
- Sentiment analysis revealed generally positive sentiments (score ~0.3) towards immunotherapy.
- Six key themes emerged: hope, effectiveness, complementary treatments, financial/mental impact, lifestyle, and side effects.
Conclusions:
- Social media analysis using BERTopic offers insights into multifaceted patient considerations for immunotherapy.
- Identified themes can enhance physician-patient communication and shared decision-making.
- BERTopic is effective for analyzing large datasets to uncover social media perceptions.
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