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Real-World Patient-Reported Outcome Measure Implementation: Challenges and Successes of a Pan-Canadian Initiative to

Sylvie Lambert1, Michael McKenzie2, Andrea C Coronado3

  • 1McGill University, Ingram School of Nursing & St Mary's Research Centre.

JCO Oncology Practice
|February 14, 2025
PubMed
Abstract

Insights

Implementing patient-reported outcome measures (PROMs) is challenging. Key lessons for successful PROM implementation include strong change management, stakeholder engagement, and leveraging technology, even amidst cost constraints and the pandemic.

Area of Science:

  • Health Services Research
  • Implementation Science
  • Quality Improvement

Background:

  • Patient-reported outcome measures (PROMs) are crucial for routine care but face limited implementation.
  • Substantial investments have been made, yet widespread adoption remains a challenge.

Purpose of the Study:

  • To identify lessons learned and challenges in implementing the same PROMs across nine Canadian jurisdictions.
  • To find solutions for advancing PROM implementation despite cost containment and the COVID-19 pandemic.

Main Methods:

  • Analysis of final reports from nine jurisdictional PROM implementation projects.
  • Thematic analysis of lessons learned, challenges, and solutions, guided by SQUIRE guidelines.

Main Results:

  • Six key lessons learned from eight challenges were identified.
  • Twenty-seven solutions were implemented, including robust change management, consistent stakeholder engagement, and leveraging technology.
  • Key lessons emphasize proactive buy-in, adaptability, and sustainability planning.

Conclusions:

  • This study synthesizes real-world PROM implementation experiences across diverse Canadian jurisdictions.
  • Generalizable solutions are provided for healthcare managers and policymakers to accelerate PROM adoption.
  • Future research should integrate these findings with implementation science frameworks for broader scalability.

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