Evaluation of the patient profile and health interventions offered by a multidisciplinary Intellectual Disability

Dominic Bull1, Pankaj Garg1,2,3, Teresa Lai1

  • 1Specialist Intellectual Disability Health Team, South Western Sydney Local Health District, Liverpool, NSW, Australia.

Insights

Specialised Intellectual Disability Health Teams improve care for children and young adults. Adherence to team recommendations significantly boosted functional improvements at six months.

Area of Science:

  • Healthcare Access
  • Intellectual Disability Services
  • Intersectoral Coordination

Background:

  • Specialised Intellectual Disability Health Teams improve healthcare access and coordination for individuals with intellectual disabilities.
  • Understanding the patient profile and care needs is crucial for optimizing these specialized services.

Purpose of the Study:

  • To review the patient profiles and healthcare recommendations for children and young adults with Intellectual Disability (ID).
  • To identify gaps in care plans and factors influencing treatment outcomes.

Main Methods:

  • Retrospective analysis of clinical records from a Specialized Intellectual Disability Health Team.
  • Statistical analysis, including logistic regression, to determine factors affecting outcomes.

Main Results:

  • Most referrals were for challenging behaviors; 13.9% lacked disability funding, and 60% needed medication adjustments.
  • Functional improvement was reported by 75% of participants at six months.
  • Adherence to team recommendations was a significant predictor (p < 0.0001) of six-month outcomes, explaining 55% of the variance.

Conclusions:

  • The study characterizes the patient population served by specialized ID health teams.
  • Gaps in care, such as funding and medication management, were identified.
  • Addressing social determinants and ensuring family partnership in implementing recommendations are vital for improving outcomes for children and young adults with ID.

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