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Evaluation of the patient profile and health interventions offered by a multidisciplinary Intellectual Disability
Dominic Bull1, Pankaj Garg1,2,3, Teresa Lai1
1Specialist Intellectual Disability Health Team, South Western Sydney Local Health District, Liverpool, NSW, Australia.
Insights
Specialised Intellectual Disability Health Teams improve care for children and young adults. Adherence to team recommendations significantly boosted functional improvements at six months.
Area of Science:
- Healthcare Access
- Intellectual Disability Services
- Intersectoral Coordination
Background:
- Specialised Intellectual Disability Health Teams improve healthcare access and coordination for individuals with intellectual disabilities.
- Understanding the patient profile and care needs is crucial for optimizing these specialized services.
Purpose of the Study:
- To review the patient profiles and healthcare recommendations for children and young adults with Intellectual Disability (ID).
- To identify gaps in care plans and factors influencing treatment outcomes.
Main Methods:
- Retrospective analysis of clinical records from a Specialized Intellectual Disability Health Team.
- Statistical analysis, including logistic regression, to determine factors affecting outcomes.
Main Results:
- Most referrals were for challenging behaviors; 13.9% lacked disability funding, and 60% needed medication adjustments.
- Functional improvement was reported by 75% of participants at six months.
- Adherence to team recommendations was a significant predictor (p < 0.0001) of six-month outcomes, explaining 55% of the variance.
Conclusions:
- The study characterizes the patient population served by specialized ID health teams.
- Gaps in care, such as funding and medication management, were identified.
- Addressing social determinants and ensuring family partnership in implementing recommendations are vital for improving outcomes for children and young adults with ID.
Abstract:
Specialised Intellectual Disability Health Teams enhance access to health services and improve intersectoral coordination. This study reviewed the profiles and healthcare recommendations for children and young adults with Intellectual Disability. Data was collected from clinical records and analysed using relevant statistical tests. Most children were referred for challenging behaviours, with 13.9% lacking a disability funding plan, and 60% requiring changes in medication. Three-quarters reported functional improvement at six months. A logistic regression model explained 55% of the variance in six-month outcomes, identifying adherence to team recommendations as a significant factor (p < 0.0001). This study highlights the patient profile of a Specialised Intellectual Disability Health Team, identifies gaps in care plans, and emphasises the importance of addressing complex social determinants to ensure effective enactment of these recommendations in partnership with families, ultimately improving outcomes for children and young adults with Intellectual Disability.
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