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Living with Long COVID: A Narrative Study.
Sheryl J Ryan1, Carly Wong1, Alice Sinclair1
1Occupational Therapy Department, California State University Dominguez Hills, Carson, CA, USA.
Occupational Therapy in Health Care
|February 17, 2025
Summary
Long COVID profoundly impacts individuals
Area of Science:
- Health Sciences
- Qualitative Research
- Patient Experience
Background:
- Long COVID, a complex condition, presents diverse and persistent symptoms.
- Understanding the lived experiences of individuals with Long COVID is crucial for effective healthcare.
- Previous research has not fully captured the multifaceted challenges faced by Long COVID patients.
Purpose of the Study:
- To explore and describe the personal narratives and experiences of individuals living with Long COVID.
- To identify key themes and challenges encountered by persons with Long COVID.
- To provide insights for improving occupational therapy interventions for Long COVID.
Main Methods:
- Qualitative narrative study design.
- Semi-structured interviews utilizing photo elicitation with four participants.
- Thematic analysis to identify recurring patterns and themes.
Main Results:
- Six major themes emerged: symptom complexity, profound emotional impact, significant daily life alterations, experiences of disbelief, solitary healthcare navigation, and the beneficial role of social support.
- Participants reported substantial changes in their physical health, daily routines, and interpersonal relationships.
- The study highlights the critical need for acknowledging and validating patient experiences.
Conclusions:
- Long COVID necessitates a holistic approach, addressing physical, emotional, and social well-being.
- Occupational therapy practitioners require specialized education on Long COVID to support clients effectively.
- Interventions should focus on functional limitations, role restoration, social support, and personal priorities.
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