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Published on: January 12, 2018
Building a diverse national research advisory board.
Gayle Valensky1, Jeff B Pawelek1, Lauren Serpico1
1Scripps Research Translational Institute, Scripps Research, La Jolla, CA, USA.
Diverse community advisory boards enhance healthcare research by ensuring cultural competence and inclusive representation. Purposeful recruitment created a safe space for advisors to shape nationwide research strategies.
Area of Science:
- Healthcare research
- Community engagement
- Health disparities
Background:
- Advisory boards in medical research are common but often lack demographic diversity.
- Homogenous, geographically limited groups may not reflect the broader community.
- Addressing health disparities requires culturally competent research practices.
Purpose of the Study:
- To recruit a demographically diverse community advisory board for the All of Us Research Program.
- To inform program strategies related to recruitment, engagement, retention, and incentives.
- To foster inclusive representation in large-scale medical research.
Main Methods:
- Purposeful recruitment strategies were employed to attract diverse community members nationwide.
- Community building initiatives focused on creating a psychologically safe environment.
- Advisors partnered with the All of Us Research Program to shape its strategies.
Main Results:
- A demographically diverse group of community advisors was successfully recruited across the U.S.
- The recruitment and community-building efforts fostered an environment of open sharing and collaboration.
- Diverse perspectives were integrated into the All of Us Research Program's strategic planning.
Conclusions:
- Diverse community advisory boards are essential for culturally competent and inclusive healthcare research.
- Purposeful recruitment and community building can create effective advisory partnerships.
- Engaging diverse voices is critical for the success of ambitious, nationwide research initiatives.
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