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Family Involvement During Patient Hospitalisation-Developing and Testing a Clinical Decision Aid.

Leah Sejrup Christensen1, Mette Hulbæk Andersen2,3, Anette Brink1

  • 1Department of Internal Medicine, University Hospital of Southern Denmark, Aabenraa, Denmark.

Scandinavian Journal of Caring Sciences
|March 10, 2025
PubMed
Summary

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This summary is machine-generated.

A new decision aid systematically involves families in patient hospitalisation, improving communication and aligning care with patient and family needs. This tool addresses distress and enhances shared decision-making for better healthcare outcomes.

Area of Science:

  • Healthcare Management
  • Patient-Centered Care
  • Family Nursing

Background:

  • Rising multi-morbidity complicates treatment and increases caregiver burden.
  • Family involvement in patient care is essential but can cause distress.
  • Shared decision-making is crucial for aligning patient and family needs with treatment.

Purpose of the Study:

  • To develop and test a decision aid for systematic family involvement during patient hospitalisation.
  • To improve communication and shared decision-making between patients, families, and healthcare professionals.
  • To align care decisions with the specific needs and preferences of patients and their families.

Main Methods:

  • Utilized a family nursing theoretical framework and the Danish Patient Decision Aid template.
Keywords:
acute hospitalisationchronic diseasequalitative researchshared decision making

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  • Conducted thematic analysis of 22 patient and 16 family interviews to identify decision options and pros/cons.
  • Alpha and beta testing of the decision aid prototype with patients, family members, and healthcare professionals in clinical settings.

    • Main Results:

    • Developed a decision aid with five option cards addressing different levels of family involvement (e.g., self-involvement, remote participation).
    • Themes identified included 'involving family when needed,' 'waiting for ward rounds,' and 'involving family with technology.'
    • Alpha testing demonstrated high acceptability and usability of the decision aid prototype.

    Conclusions:

    • The structured decision aid facilitates systematic family involvement during hospitalisation.
    • It enhances meaningful conversations among healthcare professionals, patients, and families.
    • The aid effectively identifies and addresses the unique needs and preferences of patients and their families.