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Seeking Optimal, Integrated Pediatric Medical and Social Care: A Qualitative, Peer Researcher-Driven Study
Margaret N Jones1, Clare Heaney2, Jessica Obayan3
1Department of Pediatrics (MN Jones, C Heaney, AW Henize, and AF Beck), University of Cincinnati College of Medicine, Cincinnati, Ohio; Division of General & Community Pediatrics (MN Jones, L Lipps, AW Henize, and AF Beck), Cincinnati Children's, Cincinnati, Ohio; Michael A. Fisher Child Health Equity Center (MN Jones, M Arenas, M Seid, EB Quinonez, AW Henize, and AF Beck), Cincinnati Children's, Cincinnati, Ohio.
Patients and families seek better integration of medical and social care services. Key themes highlight navigation challenges and the need for trustworthy, empathetic, and collaborative care teams to improve health outcomes.
Area of Science:
- Social determinants of health
- Health services research
- Patient-centered care
Background:
- Effective medical-social care requires collaboration between healthcare systems, human services, and communities.
- Understanding patient and family perspectives is crucial for improving care delivery.
Purpose of the Study:
- To gather qualitative insights from patients, families, and community partners.
- To inform the development of responsive and integrated medical-social care models.
Main Methods:
- Qualitative and co-design methodologies were utilized.
- Peer researchers conducted interviews with pediatric patients and their caregivers in Greater Cincinnati.
- Findings were validated through community discussions.
Main Results:
- Participants identified significant barriers in navigating medical and social services.
- Care was often reactive rather than proactive, with a need for closer integration.
- Trust, empathy, clear communication, and shared lived experiences on care teams emerged as critical factors.
Conclusions:
- Patients, families, and communities have identified actionable themes for enhancing medical and social care.
- Future steps involve developing and evaluating prototype interventions based on these findings.
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