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Illustrating User Needs for eHealth With Experience Map: Interview Study With Chronic Kidney Disease Patients
Paula Valkonen1, Sini Hölsä1, Johanna Viitanen1
1Department of Computer Science, Aalto University, Espoo, Finland.
JMIR Human Factors
|March 18, 2025
Summary
This study developed a kidney disease experience map to understand the eHealth needs of home dialysis patients. The map highlights user needs, concerns, and barriers to improve eHealth solutions for chronic kidney disease management.
Area of Science:
- Health Informatics
- Human-Computer Interaction
- Nephrology
Background:
- Chronic kidney disease (CKD) affects many globally, with home dialysis (HD) offering significant benefits.
- eHealth solutions require high usability and user experience, yet research on HD patient needs is limited.
Purpose of the Study:
- To support eHealth design for CKD patients, especially those on HD, by creating a kidney disease experience map.
- To identify user needs, concerns, and barriers for HD eHealth among older adults (>60 years).
Main Methods:
- Retrospective interviews with 18 patients across different care modalities.
- Thematic analysis of interview data to identify key themes related to CKD and eHealth.
Main Results:
- Five categories emerged: healthy habits, eHealth concerns/barriers, digital communication, patient emotions, and daily life with CKD.
- Patients experienced challenges with eHealth software, skill gaps, and devices not meeting their needs, leading to frustration but also hope.
Conclusions:
- The kidney disease experience map effectively illustrates user needs for eHealth development in CKD.
- eHealth can support daily life for chronic disease patients, but solutions must consider individual circumstances and varying capacities for use.
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