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The Importance of Including Underserved Populations in Research.
Kayla R Mehl1, Stephanie R Morain2,3, Emily A Largent4
1Johns Hopkins Berman Institute of Bioethics, 2129 Ashland Avenue, Baltimore, MD, 21205, USA. kmehl2@jh.edu.
Pharmaceutical Medicine
|April 1, 2025
Summary
Including underserved populations in clinical trials is vital for research fairness and effective healthcare. Addressing barriers like access and engagement promotes health equity.
Area of Science:
- Clinical Trials
- Health Equity
- Research Ethics
Background:
- Underserved populations face systemic barriers to healthcare access and research participation.
- Lack of representation in clinical trials undermines research fairness and inclusive healthcare development.
- Inclusion is crucial for justice, generalizability of findings, and building trust in medical institutions.
Purpose of the Study:
- To provide an overview of ethical considerations for including underserved populations in later-phase clinical trials.
- To differentiate underserved populations from other groups (vulnerable, minority, underrepresented).
- To explore barriers and targeted solutions for specific underserved groups.
Main Methods:
- Review of ethical considerations and barriers to research participation.
- Identification of targeted solutions for rural residents, racial/ethnic minorities, low-income individuals, and older adults.
- Analysis of strategies for improving participation.
Main Results:
- Key barriers include systemic, logistical, and social factors limiting access.
- Effective strategies involve accessible trial sites, reduced financial/logistical burdens, broader eligibility, and culturally tailored outreach.
- Intersectional and context-specific strategies are essential, requiring multi-stakeholder collaboration.
Conclusions:
- Widespread implementation of participation strategies represents meaningful steps toward advancing health equity.
- Addressing underrepresentation in research is a critical component of resolving healthcare inequities.
- Tailored, coordinated efforts are necessary to ensure equitable research inclusion.
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