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This summary is machine-generated.

Implementing patient-reported outcomes (PROs) programs at cancer centers is feasible. Key factors for successful PRO adoption include strong governance, patient experience focus, and efficient clinician workflow integration.

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Area of Science:

  • Oncology
  • Health Informatics
  • Patient-Centered Care

Background:

  • Patient-reported outcomes (PROs) enhance patient engagement but face adoption challenges.
  • Scaling PROs in healthcare requires robust infrastructure and processes.

Purpose of the Study:

  • To describe the design, development, and large-scale adoption of a comprehensive PRO program.
  • To outline a model for integrating PROs into standard care and research at a cancer center.

Main Methods:

  • Gathered stakeholder requirements for PRO program development.
  • Established governance, content management, patient engagement tools, and clinical workflow integration.
  • Utilized descriptive statistics to evaluate program utilization from 2016-2023.

Main Results:

  • Developed 189 unique questionnaires (101 standard-of-care, 70 research, 18 quality improvement).
  • Achieved a 73% patient completion rate (314,685 of 432,497 patients).
  • Reported a 52% overall questionnaire completion rate (3,098,574 of 5,948,464) with a median completion time of 2 minutes.

Conclusions:

  • Large-scale PRO adoption in cancer care is achievable.
  • Success hinges on governance, patient experience, clinician workflow integration, and managing complex delivery criteria.
  • Disseminating these principles can unlock the full potential of PROs in healthcare.