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Patient-Reported Outcomes Program at Scale at a Cancer Center
Fernanda C G Polubriaginof1, Allison Lipitz-Snyderman1, Susan Chimonas1
1Digital Informatics and Technology Solutions, Memorial Sloan Kettering Cancer Center, New York, NY.
JCO Clinical Cancer Informatics
|April 22, 2025
Summary
Implementing patient-reported outcomes (PROs) programs at cancer centers is feasible. Key factors for successful PRO adoption include strong governance, patient experience focus, and efficient clinician workflow integration.
Area of Science:
- Oncology
- Health Informatics
- Patient-Centered Care
Background:
- Patient-reported outcomes (PROs) enhance patient engagement but face adoption challenges.
- Scaling PROs in healthcare requires robust infrastructure and processes.
Purpose of the Study:
- To describe the design, development, and large-scale adoption of a comprehensive PRO program.
- To outline a model for integrating PROs into standard care and research at a cancer center.
Main Methods:
- Gathered stakeholder requirements for PRO program development.
- Established governance, content management, patient engagement tools, and clinical workflow integration.
- Utilized descriptive statistics to evaluate program utilization from 2016-2023.
Main Results:
- Developed 189 unique questionnaires (101 standard-of-care, 70 research, 18 quality improvement).
- Achieved a 73% patient completion rate (314,685 of 432,497 patients).
- Reported a 52% overall questionnaire completion rate (3,098,574 of 5,948,464) with a median completion time of 2 minutes.
Conclusions:
- Large-scale PRO adoption in cancer care is achievable.
- Success hinges on governance, patient experience, clinician workflow integration, and managing complex delivery criteria.
- Disseminating these principles can unlock the full potential of PROs in healthcare.
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