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Area of Science:

  • Neonatal care
  • Child development
  • Parental perception

Background:

  • Neonatal intensive care unit (NICU) graduates often face developmental challenges.
  • Understanding parental perspectives on child development post-NICU is crucial.

Purpose of the Study:

  • To investigate how parents assess their child's development after NICU discharge.
  • To explore discrepancies between parental and physician developmental assessments.

Main Methods:

  • Semi-structured interviews were conducted with 23 parents.
  • Explored sources of developmental information and integration methods.

Main Results:

  • Parents viewed NICU discharge as a transition, focusing on progress over comparison post-discharge.
  • Parents preferred positive, actionable developmental information.
  • Parental assessments were influenced by coping and family well-being.

Conclusions:

  • Aligning medical and parental assessments can better support families.
  • Integrating parental perspectives can inform the development of meaningful developmental metrics.