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Historical Gaps in the Integration of Patient-Centric Self-Management Components in HFrEF Interventions: An Umbrella
Pupalan Iyngkaran1,2, Fareda Fazli2, Hayden Nguyen3
1Melbourne Clninical School, University of Notre Dame, Melbourne, VIC 3030, Australia.
Insights
Chronic disease self-management (CDSM) interventions for heart failure (HF) show inconsistent reporting of key components like self-monitoring and goal setting. Improved reporting is needed for long-term outcomes to enhance HF care guidelines.
Area of Science:
- Cardiology
- Health Services Research
- Patient Self-Management
Background:
- Chronic disease self-management (CDSM) interventions show promise for heart failure (HF), especially with reduced ejection fraction (HFrEF).
- Patient-centric programs typically include education, self-monitoring, and goal setting.
- The consistent reporting and integration of these components in studies are not well understood.
Purpose of the Study:
- To conduct an umbrella narrative review of systematic reviews.
- To assess the consistency of reporting for patient-centric self-management components in HF interventions.
- To identify gaps in reporting long-term patient outcomes.
Main Methods:
- Synthesized findings from systematic reviews and meta-analyses (2000-2023) on CDSM tools in HF.
- Evaluated the presence and consistency of reporting for education, self-monitoring, and goal setting in HFrEF interventions.
- Focused data extraction on reporting frequency and long-term outcome reporting gaps.
Main Results:
- Education was universally reported (100%).
- Self-monitoring and goal setting were reported in approximately 50% of studies.
- Reporting of long-term outcomes (mortality, quality of life) was highly variable and often missing.
Conclusions:
- Significant gaps exist in the consistent reporting of CDSM components within systematic reviews for HFrEF.
- Inconsistent inclusion of all three core components and limited long-term outcome data hinder evidence development for HF guidelines.
- Future research must prioritize comprehensive reporting to strengthen patient-centric self-management strategies in HF care.
Abstract:
Background: Chronic disease self-management (CDSM) interventions have shown promise in improving patient outcomes in heart failure (HF), particularly for those with reduced ejection fraction (HFrEF). Patient-centric self-management programs often incorporate key components such as education, self-monitoring, and goal setting. However, the extent to which these components are consistently reported and integrated into studies remains unclear. This umbrella narrative review aims to analyze systematic reviews to assess the consistency of reporting on patient-centric self-management components implemented in trials and studies. Methods: This umbrella narrative review synthesized findings from systematic reviews and meta-analyses published between 2000 and 2023 for CDSM tools in HF. Eligible studies were assessed for the presence and consistency of reporting on education, self-monitoring, and goal setting in self-management interventions for HFrEF. Data extraction focused on the frequency of reporting these components and the gaps in reporting long-term patient outcomes. Results: Among the included systematic reviews, education was the most consistently reported component (100%), while self-monitoring and goal setting were each reported in around 50% of studies. Reporting of long-term outcomes, such as mortality and quality of life, was highly variable and often absent. These inconsistencies highlight significant gaps in the evidence base for CDSM interventions. Conclusions: This review identifies gaps in the consistent reporting of key CDSM components in systematic reviews of HFrEF interventions. The inconsistent inclusion of all three components together and limited reporting of long-term outcomes may hinder the development of a robust evidence base for the adoption of these tools in HF guidelines. Future studies should prioritize comprehensive reporting to strengthen the foundation for patient-centric self-management strategies in HF care. PROSPERO registration number CRD42023431539.
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