Historical Gaps in the Integration of Patient-Centric Self-Management Components in HFrEF Interventions: An Umbrella

Pupalan Iyngkaran1,2, Fareda Fazli2, Hayden Nguyen3

  • 1Melbourne Clninical School, University of Notre Dame, Melbourne, VIC 3030, Australia.

PubMed

Insights

Chronic disease self-management (CDSM) interventions for heart failure (HF) show inconsistent reporting of key components like self-monitoring and goal setting. Improved reporting is needed for long-term outcomes to enhance HF care guidelines.

Area of Science:

  • Cardiology
  • Health Services Research
  • Patient Self-Management

Background:

  • Chronic disease self-management (CDSM) interventions show promise for heart failure (HF), especially with reduced ejection fraction (HFrEF).
  • Patient-centric programs typically include education, self-monitoring, and goal setting.
  • The consistent reporting and integration of these components in studies are not well understood.

Purpose of the Study:

  • To conduct an umbrella narrative review of systematic reviews.
  • To assess the consistency of reporting for patient-centric self-management components in HF interventions.
  • To identify gaps in reporting long-term patient outcomes.

Main Methods:

  • Synthesized findings from systematic reviews and meta-analyses (2000-2023) on CDSM tools in HF.
  • Evaluated the presence and consistency of reporting for education, self-monitoring, and goal setting in HFrEF interventions.
  • Focused data extraction on reporting frequency and long-term outcome reporting gaps.

Main Results:

  • Education was universally reported (100%).
  • Self-monitoring and goal setting were reported in approximately 50% of studies.
  • Reporting of long-term outcomes (mortality, quality of life) was highly variable and often missing.

Conclusions:

  • Significant gaps exist in the consistent reporting of CDSM components within systematic reviews for HFrEF.
  • Inconsistent inclusion of all three core components and limited long-term outcome data hinder evidence development for HF guidelines.
  • Future research must prioritize comprehensive reporting to strengthen patient-centric self-management strategies in HF care.

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