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Quality of Life in Children with Celiac Disease: An Observational Study
Anna Rozensztrauch1, Paulina Mostyńska2
1Department of Pediatrics and Coordinated Child Care, Wroclaw Medical University, 50-367 Wroclaw, Poland.
Insights
Quality of life in pediatric celiac disease (CD) is impacted by social challenges from dietary restrictions. Assessing physical and psychosocial well-being is crucial for children with CD.
Area of Science:
- Pediatric autoimmune disorders
- Clinical psychology
- Public health
Background:
- Celiac disease (CD) is a prevalent chronic autoimmune condition in children globally.
- Quality of life (QOL) research is vital for understanding the holistic well-being of pediatric CD patients.
- Assessing both physical and psychosocial aspects is essential for comprehensive care.
Purpose of the Study:
- To investigate the significance of QOL research in pediatric celiac disease.
- To highlight the importance of evaluating physical and psychosocial health in children with CD.
Main Methods:
- A self-administered questionnaire was employed for data collection.
- The questionnaire included sociodemographic and clinical characteristics.
- The validated PedsQL™ 4.0 was used for general QOL assessment.
Main Results:
- Dietary restrictions led to social challenges for 43% of children during family events and 48% in school settings.
- The overall QOL score averaged 68.9 (SD = 15.00), indicating significant individual variability.
- Age was identified as a significant factor affecting social interactions and school experiences.
Conclusions:
- The study factor significantly influences physical functioning and overall QOL in pediatric CD.
- The impact of the study factor on emotional, social, and school domains was comparatively lower.
- Comprehensive QOL assessment is necessary for effective management of pediatric celiac disease.
Abstract:
Background/Objectives: Celiac disease (CD) is one of the most common chronic autoimmune disorders affecting children worldwide. The aim is to explore the significance of quality of life (QOL) research in pediatric CD, highlighting the importance of assessing both physical and psychosocial aspects of well-being. Materials and Methods: The study used a self-administered questionnaire, which consisted of questions on sociodemographic and clinical characteristics, as well as a general assessment of the QOL by using the validated PedsQL™ 4.0. Results: Dietary restrictions were associated with social challenges, as reported by 43% of respondents who indicated their child had experienced exclusion or distress during family gatherings, while 48% encountered difficulties in the school setting. The overall QOL score had a mean of 68.9 (SD = 15.00), with a median of 67.4, and ranged from 41.3 to 100.0, reflecting individual variations in perceived well-being. Age is a significant factor influencing children's social interactions and experiences within educational settings, likely due to increased academic demands, social pressures, or developmental changes. Conclusions: The study suggests that the study factor significantly influences physical functioning and overall quality of life, while its impact on emotional, social, and school domains is comparatively lower.
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