Related Experiment Video
Updated: May 16, 2025

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
How Community-Based Organizations View and Use Data: Practices, Challenges, and Opportunities.
Community-based organizations (CBOs) need more localized, culturally relevant data. Challenges like funding and staffing limit data use, highlighting a need for infrastructure support to maintain community-driven missions.
Area of Science:
- Public Health
- Community Health
- Data Science in Social Services
Background:
- The COVID-19 pandemic underscored the critical role of community-based organizations (CBOs) in delivering social services.
- Understanding the evolving data needs of CBOs is essential for effective post-pandemic support and service delivery.
- Previous research has not fully captured the persistent data challenges faced by CBOs serving diverse and low-income populations.
Purpose of the Study:
- To define the specific data requirements of community-based organizations (CBOs) in the post-COVID-19 era.
- To identify barriers hindering the expansion of data utilization among CBOs.
- To assess the adequacy of existing population-level data for CBOs' hyper-local and culturally specific needs.
Main Methods:
- A mixed-methods explanatory sequential design was employed during summer/fall 2023.
- Quantitative data were collected via surveys from 51 CBOs serving diverse communities in the Chicago region.
- Qualitative data were gathered through in-depth interviews with 24 of these CBOs to explore survey findings.
Main Results:
- All surveyed CBOs utilized data, with 82.4% employing population-level data.
- Significant limitations to data use expansion included funding, staffing, data management systems, and requisite skills.
- Existing population-level data was frequently found to be insufficiently hyper-local, updated, or culturally appropriate for CBOs' target communities.
Conclusions:
- Community-based organization data needs and challenges remain largely unchanged post-COVID-19, despite increased data availability.
- There is a critical need for sustained infrastructure funding and external agency partnerships to support CBOs.
- Flexible, tailored approaches are essential to build social trust in data and ensure CBOs remain community-driven.
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