Related Experiment Video
Updated: Jul 10, 2026
06:32
Bringing the Clinic Home: An At-Home Multi-Modal Data Collection Ecosystem to Support Adaptive Deep Brain Stimulation
Published on: July 14, 2023
Barriers and Facilitators for Federated Health Data Networks: Lessons Learned from a Nordic-Baltic Experience
Aleksandar Babic1, Alexandra Makhlysheva2, Laura-Maria Peltonen3
1Group Research and Development, DNV, 1322 Høvik, Norway.
Studies in Health Technology and Informatics
|May 17, 2025
Summary
Establishing cross-border federated health data networks faces challenges. This study identifies key facilitators like motivation and regulatory alignment, alongside major barriers such as privacy concerns and technical infrastructure for successful consortium formation.
Area of Science:
- Health Informatics
- Data Science
- International Health Policy
Background:
- The increasing use of artificial intelligence (AI) and big data offers potential for cross-border health data sharing.
- Establishing federated health data networks internationally presents unique opportunities and significant challenges.
- Early-phase identification of barriers and facilitators is crucial for successful network development.
Purpose of the Study:
- To document and prioritize barriers and facilitators in the early stages of establishing a Nordic-Baltic Federated Health Data Network.
- To provide pre-implementation guidance for future cross-border federated health data consortia.
- To inform strategies for overcoming obstacles in international health data network formation.
Main Methods:
- A mixed-methods approach was employed to identify and prioritize factors influencing consortium formation.
- Qualitative and quantitative data were gathered and analyzed to understand key drivers and impediments.
- The study focused on the pre-technical implementation phase of the Nordic-Baltic Federated Health Data Network.
Main Results:
- Five key facilitator clusters were identified, including strong motivation, interdisciplinary collaboration, and regulatory alignment.
- Six major barrier clusters were identified, with security/privacy concerns and technical infrastructure challenges being most critical.
- Barriers impact both human collaboration and technical aspects, highlighting the dual nature of network development.
Conclusions:
- Understanding and addressing identified barriers and facilitators is essential for successful cross-border federated health data network establishment.
- Actionable strategies derived from this study can enhance preparedness for future international health data consortia.
- Proactive planning based on pre-implementation insights can mitigate risks and accelerate the development of global health data networks.
Related Concept Videos
01:11Secondary Healthcare System
Secondary healthcare is offered by a specialist, generally in hospitals or clinics for patients referred by primary healthcare providers. It occurs when a person has an illness or injury that requires specific medical care. Secondary care is often referred to as acute care. Secondary care can range from uncomplicated care to repair a minor laceration or treat a strep throat infection to more complicated emergent care, such as treating a head injury sustained in an automobile accident. Whatever...
01:29Issues And Trends In Healthcare Delivery System
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
01:20Integrated Healthcare System
An integrated healthcare system (IHS) is a set of organizations that provides for or arranges to provide coordinated and continuous service to a defined population. The IHS takes responsibility for that particular population's health status and outcome, both clinically and fiscally. An integrated healthcare system is a well-organized, well-coordinated, and collaborative network. The integrated delivery system is a network that connects different healthcare providers to deliver organized,...
01:21Barriers to Effective Communication II
The barriers to effective communication also include cultural barriers, semantic barriers, gender barriers, and time constraints.
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
01:19Purpose of Health Records II
Health records serve various essential purposes in the healthcare system. Here are some key purposes:
01:30Health Information Technology and Healthcare Information System
Health Information Technology (HIT)
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include: