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Integrating Patient-Generated Health Data from a Smartphone App Across Multiple Healthcare Providers: A Case Study.

Sabine N van der Veer1, Sarah Knowles1, Dawn Dowding1

  • 1University of Manchester, Manchester, United Kingdom.

Studies in Health Technology and Informatics
|May 17, 2025
PubMed
Summary

The Remote Monitoring of Rheumatoid Arthritis (REMORA) programme successfully integrated a patient-generated health data app into the NHS. This case study details the infrastructure and processes for scaling up similar digital health integrations.

Keywords:
Mobile applicationsPatient-generated health dataQualitative researchSystems integration

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Area of Science:

  • Digital Health
  • Health Informatics
  • Rheumatology

Background:

  • Patient-generated health data (PGHD) collection via smartphone apps is common, but integration with healthcare systems is limited.
  • Sharing PGHD with healthcare providers requires robust electronic health record (EHR) system integration.

Purpose of the Study:

  • To present a case study of the Remote Monitoring of Rheumatoid Arthritis (REMORA) programme's integration of a symptom tracking app into the National Health Service (NHS).
  • To describe the infrastructure, processes, people, and influencing factors involved in integrating PGHD across multiple healthcare providers with diverse IT systems.

Main Methods:

  • Case study methodology informed by meetings and interviews with the REMORA project team.
  • Analysis of the infrastructure, integration processes, stakeholder involvement, and influencing factors.
  • Planned further interviews to develop stakeholder recommendations.

Main Results:

  • Successful integration of a university-provided app into 16 NHS rheumatology departments across two regions with distinct IT infrastructures.
  • Identification of key processes and influencing factors critical for cross-provider integration of PGHD.

Conclusions:

  • The REMORA programme demonstrates a feasible model for integrating PGHD into routine clinical care within the NHS.
  • Findings will inform recommendations to facilitate wider adoption and scaling of integrated PGHD systems for improved patient management.