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Editing the Future: A Call for Justice, Humility, and Communion.

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Human heritable genome editing requires ethical considerations, drawing from social justice values to protect vulnerable populations. Responsible development ensures technology serves humanity and upholds shared values.

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Area of Science:

  • Biomedical Ethics
  • Human Genetics
  • Social Justice

Background:

  • Technology should prioritize human well-being, especially for those with illnesses.
  • Decades of experience in rare genetic disease research and liberation theology inform this perspective.
  • The ethical landscape of human heritable genome editing is complex and high-stakes.

Purpose of the Study:

  • To discuss the critical ethical considerations of human heritable genome editing.
  • To explore how civil rights and social justice movements can guide genome editing practices.
  • To emphasize the responsibility of stakeholders in shaping the future of humanity through genome editing.

Main Methods:

  • Perspective piece drawing on personal experience in rare genetic disease research.
  • Analysis of ethical frameworks informed by civil rights and social justice movements.
  • Discussion of the implications of genome editing for vulnerable populations.

Main Results:

  • Genome editing decisions carry profound implications for the definition of humanity.
  • Ethical frameworks from social justice movements offer guidance for equitable genome editing.
  • Stakeholders must consider the vulnerable, poor, and voiceless in all genome editing projects.

Conclusions:

  • Genome editing technology must be developed with a strong ethical foundation.
  • Integrating social justice principles is crucial for responsible innovation in human heritable genome editing.
  • Academia, biotech, philanthropy, and policymakers share the responsibility for ethical genome editing governance.