A Family-Centered Approach to the Care and Rehabilitation of a Child With Sepsis-Associated Encephalopathy

Area of Science:

• Pediatric Neurology
• Rehabilitation Medicine
• Developmental Pediatrics

Background:

• Sepsis-associated encephalopathy (SAE) is a common, severe complication with significant long-term neurological deficits.
• SAE impacts multiple developmental domains in children, affecting quality of life and increasing mortality.
• A family-centered approach is recognized as optimal for early intervention and pediatric rehabilitation.

Observation:

• A 16-month-old child diagnosed with SAE presented with deficits in eating, motor skills, cognition, and communication.
• The child received intensive rehabilitation post-ICU, including speech, physical, and occupational therapy, alongside medication for spasticity.
• The mother was actively involved, receiving coaching and participating as a treatment team member.

Findings:

• Two months of family-centered rehabilitation led to notable improvements in the child's nutritional status and eating abilities.
• Significant gains were observed in motor skills, cognitive function, and communication.
• Family satisfaction with the care and rehabilitation program was high.

Implications:

• Family-centered care is effective for pediatric rehabilitation, even in resource-limited environments.
• Early and comprehensive intervention can mitigate long-term neurological sequelae of SAE.
• Empowering families as active participants enhances therapeutic outcomes in pediatric rehabilitation.