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Updated: Sep 20, 2025

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

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Factors influencing participation in home, school, and community settings by 6- to 9-year-old children born preterm:

Tiffany K Bradshaw1,2, James T D Gibbons1,2,3, Andrew C Wilson1,3,4

  • 1Wal-Yan Respiratory Research Centre, The Kids Research Institute Australia, Perth, WA, Australia.

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
|May 23, 2025
PubMed

Insights

Very preterm children face diverse health needs and participation challenges in middle childhood. Parental insights highlight impacts on their child

Area of Science:

  • Pediatrics
  • Developmental Psychology
  • Child Health

Background:

  • Middle childhood (6-9 years) is crucial for developing motor, reasoning, self-regulation, social, and executive functioning skills.
  • Limited research exists on the activities and participation of very preterm children during this developmental stage.
  • Understanding these children's experiences is vital for targeted support.

Purpose of the Study:

  • To explore the health, activities, and participation of very preterm children (born <32 weeks gestation) aged 6-9 years.
  • To gather parents' perspectives on their children's functioning and engagement in various life domains.
  • To identify factors influencing the activities and participation of these children.

Main Methods:

  • Qualitative descriptive study design.
  • Semi-structured interviews conducted with 20 parents of 27 very preterm children.
  • Interview data analyzed and coded using the International Classification of Functioning, Disability and Health – Children and Youth version (ICF-CY) domains.

Main Results:

  • Parents reported a wide spectrum of health needs, including respiratory, mental health, behavioral, sleep, and nutritional challenges.
  • Children's participation and functioning were influenced by personal factors (e.g., preferences, motivation) and environmental factors (e.g., parenting, educational support, healthcare access).
  • Diverse participation outcomes were observed, indicating varied experiences among very preterm children.

Conclusions:

  • Preterm birth significantly impacts children's health, activities, and participation during middle childhood.
  • A comprehensive understanding of these impacts is essential for effective clinical management.
  • Parental perspectives offer valuable insights into the holistic well-being of very preterm children.
Abstract

Keywords:
DevelopmentFunctioningMiddle ChildhoodParticipationPreterm

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