Related Experiment Video
Updated: Jun 2, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Examining Support Networks Among Individuals With Intellectual and Developmental Disabilities
Megan Best1, Meghan M Burke1, Catherine K Arnold1
1Megan Best, University of Illinois at Urbana-Champaign; Meghan M. Burke, Vanderbilt University; and Catherine K. Arnold, University of Illinois at Chicago.
None:
Understanding the support networks of individuals with intellectual and developmental disabilities (IDD) is important given that adults with IDD are outliving their parents-i.e., their primary caregivers. We surveyed 601 adult siblings of individuals with IDD to identify: Who provides caregiving support to adults with IDD? Do the types of caregiving support vary in relation to the support network role? To what extent do individual, sibling, and family characteristics correlate with the size of the support network? On average, individuals with IDD possessed small support networks, with most support networks comprised of family members (primarily parents). Individuals with Down syndrome (versus autism) reported larger support networks. Implications for research, practice, and policy are discussed.
More Related Videos
11:29Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools
Published on: June 20, 2020
11:14A Novel Experimental and Analytical Approach to the Multimodal Neural Decoding of Intent During Social Interaction in Freely-behaving Human Infants
Published on: October 4, 2015
Related Concept Videos
Intellectual Disability
Relationship with Other Adult Family Members and Siblings
Learning Disabilities
Dyslexia
Dyslexia is a...
Relationship Formation
Autism Spectrum Disorder
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
Influence of Parents and Peers on Identity
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth. This guiding role...