Characterizing service receipt among families of young autistic children from low-resourced communities

Julianna Kim1, Bhabika Joshi1, Meghan M Burke1

  • 1Department of Special Education, Vanderbilt University, Nashville, TN, USA.

Insights

Early intervention services benefit young autistic children and their families. However, families in low-resourced areas face barriers, with unmet needs in speech therapy and developmental care highlighting service gaps.

Area of Science:

  • Developmental Psychology
  • Public Health
  • Pediatrics

Background:

  • Early intervention services are crucial for young autistic children (3-5 years), offering long-term developmental and societal benefits.
  • Families from low-resourced communities encounter significant barriers in accessing necessary services for their autistic children.
  • Understanding service receipt and unmet needs is vital for targeted interventions in underserved populations.

Purpose of the Study:

  • To characterize current service receipt among young autistic children from low-resourced communities.
  • To identify unmet service needs and barriers to access within this population.
  • To inform future research and practice for equitable service provision.

Main Methods:

  • A survey was administered to 52 parents of 3-5-year-old autistic children from low-resourced communities.
  • The survey collected data on services received and unmet needs.
  • Descriptive statistics were used to analyze service receipt patterns and satisfaction.

Main Results:

  • Children received an average of 8.84 services, with health-related services (pediatric care, insurance, dental) being most common.
  • Most parents (66%) were satisfied with services, particularly health services.
  • Key unmet needs included speech therapy, developmental pediatric care, and recreational services. Barriers included lack of knowledge and not seeking services.

Conclusions:

  • While health services show high satisfaction, significant gaps exist in crucial areas like speech therapy for autistic children in low-resourced settings.
  • Addressing barriers such as lack of awareness is essential for improving service access.
  • Interventions should prioritize unmet needs like speech therapy and developmental pediatric care to enhance outcomes for these families.

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