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Published on: July 31, 2017
Characterizing service receipt among families of young autistic children from low-resourced communities
Julianna Kim1, Bhabika Joshi1, Meghan M Burke1
1Department of Special Education, Vanderbilt University, Nashville, TN, USA.
Insights
Early intervention services benefit young autistic children and their families. However, families in low-resourced areas face barriers, with unmet needs in speech therapy and developmental care highlighting service gaps.
Area of Science:
- Developmental Psychology
- Public Health
- Pediatrics
Background:
- Early intervention services are crucial for young autistic children (3-5 years), offering long-term developmental and societal benefits.
- Families from low-resourced communities encounter significant barriers in accessing necessary services for their autistic children.
- Understanding service receipt and unmet needs is vital for targeted interventions in underserved populations.
Purpose of the Study:
- To characterize current service receipt among young autistic children from low-resourced communities.
- To identify unmet service needs and barriers to access within this population.
- To inform future research and practice for equitable service provision.
Main Methods:
- A survey was administered to 52 parents of 3-5-year-old autistic children from low-resourced communities.
- The survey collected data on services received and unmet needs.
- Descriptive statistics were used to analyze service receipt patterns and satisfaction.
Main Results:
- Children received an average of 8.84 services, with health-related services (pediatric care, insurance, dental) being most common.
- Most parents (66%) were satisfied with services, particularly health services.
- Key unmet needs included speech therapy, developmental pediatric care, and recreational services. Barriers included lack of knowledge and not seeking services.
Conclusions:
- While health services show high satisfaction, significant gaps exist in crucial areas like speech therapy for autistic children in low-resourced settings.
- Addressing barriers such as lack of awareness is essential for improving service access.
- Interventions should prioritize unmet needs like speech therapy and developmental pediatric care to enhance outcomes for these families.
Abstract:
When young autistic children (aged 3-5) receive appropriate services, they experience long-term developmental benefits, along with positive impacts on their families and society. However, families of autistic children from low-resourced communities often face compounded barriers to accessing needed services. It is important to characterize service receipt, including current services and unmet service needs, to identify which unmet service needs should be targeted for intervention among families from low-resourced communities. In this study, 52 parents of 3-5-year-olds with autism from low-resourced communities completed a survey characterizing their service receipt. On average, children received 8.84 services. The most frequently received services were health-related, including pediatric care, health insurance, and dental services. Most participants (66%) reported being satisfied with the services, with the highest satisfaction found in health services. The most frequently unmet services were speech therapy, developmental pediatric care, and recreational services. Barriers to accessing services included participants reporting that they have not looked for relevant services and a lack of knowledge about available services. Implications for research and practice are discussed.
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