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The relationship between self-stigmatization and care burden in caregivers of children with chronic illness

Cengiz Tez1, Emre Ciydem2

  • 1Bandırma Onyedi Eylul University, Institute of Graduate Studies, Department of Nursing, Department of Mental Health and Psychiatric Nursing, Bandırma Onyedi Eylul University, Central Campus, 10200 Bandırma, Balıkesir, Türkiye.

Journal of Pediatric Nursing
|May 30, 2025
PubMed

Insights

Caregivers of children with chronic illnesses experience significant care burdens. Reducing self-stigmatization, particularly perceived worthlessness and social withdrawal, is key to alleviating this burden.

Area of Science:

  • Pediatric healthcare
  • Caregiver support
  • Chronic illness management

Background:

  • Caregivers of children with chronic diseases face unique challenges.
  • Self-stigmatization can negatively impact caregiver well-being.
  • Understanding the link between self-stigma and care burden is crucial.

Purpose of the Study:

  • To investigate the relationship between self-stigma and care burden in caregivers of chronically ill children.
  • To identify specific dimensions of self-stigma associated with care burden.

Main Methods:

  • A cross-sectional study involving 399 caregivers of children with chronic illnesses.
  • Data collected from a private medical center's pediatric clinics and inpatient units.
  • Statistical analyses included descriptive statistics, t-tests, ANOVA, Pearson correlation, and multiple linear regression.

Main Results:

  • Caregivers reported a mean care burden score of 38.58.
  • Mean self-stigmatization scores were 29.20 overall, with sub-dimensions including social withdrawal (14.05) and perceived worthlessness (10.28).
  • Perceived worthlessness and social withdrawal were positively correlated with care burden, while disease concealment showed a negative correlation.

Conclusions:

  • Self-stigmatization, especially perceived worthlessness and social withdrawal, significantly relates to increased care burden.
  • Factors like patient relationship, daily care duration, patient age, and disease duration also influence care burden.
  • Interventions targeting self-stigmatization are essential for reducing caregiver burden in pediatric chronic illness care.
Abstract

Keywords:
Care burdenCaregiverChildChronic diseaseSelf-stigma

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