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A Unique Approach to Interdisciplinary Programmatic Palliative Care Development: Extending Into the Realm of
Allison Uber1, Roberta H Adams2,3, Shannon Marcus1
1Division of Palliative Medicine, Phoenix Children's, Phoenix, Arizona, USA.
Implementing a structured pediatric palliative care program in pediatric oncology improved care delivery and patient/family satisfaction. This approach addresses common barriers to pediatric palliative care (PPC) integration.
Area of Science:
- Palliative Care
- Pediatric Oncology
- Healthcare Program Development
Background:
- Barriers to pediatric palliative care (PPC) integration in pediatric oncology include resource limitations, provider attitudes, patient/family hesitancy, and timing.
- Effective PPC integration is crucial for improving quality of life for children with cancer.
Purpose of the Study:
- To report on a unique, multistep approach for establishing a pediatric palliative oncology program.
- To optimize PPC delivery across diverse resource settings and ensure continuity of care.
- To enhance PPC equity and foster collaboration.
Main Methods:
- Developed a model for PPC delivery optimized for various resource settings.
- Ensured continuity of care across inpatient and outpatient settings.
- Implemented standardized referral practices and tools to introduce PPC to patients/families.
Main Results:
- Demonstrated objective increases in PPC consultations.
- Reported high satisfaction levels from patients, families, and oncologists.
- The model successfully addressed barriers to PPC integration.
Conclusions:
- The developed model successfully established a pediatric palliative oncology program.
- This approach enhances PPC equity, collaboration, and patient/family-centered care.
- Successful integration of PPC leads to improved outcomes and satisfaction in pediatric oncology.
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