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The Lived Experience of Individuals With Prosthetic Joint Infection
Margaret M Harding1,2,3, Kim L Larson1,2,3, Linda P Bolin1,2,3
1Margaret M. Harding, PhD, RN, AGPCNP-BC, RNFA, Department of Orthopaedics, Duke University Hospital, Durham, NC; Clinical Faculty, Duke University School of Nursing, Durham, NC.
Prosthetic joint infection (PJI) significantly impacts patients, causing loss of independence and financial security. This painful experience, often leading to poor outcomes, highlights the need for better support and management strategies.
Area of Science:
- Orthopedics
- Medical Sociology
- Patient Experience Research
Background:
- Prosthetic joint infection (PJI) is a severe complication following total joint arthroplasty.
- PJI presents a survival rate comparable to or worse than certain cancers.
Purpose of the Study:
- To explore the lived experience of patients suffering from prosthetic joint infection.
- To understand the multifaceted impact of PJI on patients' lives.
Main Methods:
- Qualitative descriptive phenomenology design.
- In-depth interviews with twelve participants experiencing PJI.
- Chart review to evaluate surgical outcomes.
Main Results:
- Two primary themes emerged: "The Nail in the Coffin" (loss of independence, identity, financial security) and "Struggle with Living" (pain, burden, uncertainty, emotional distress).
- Half of the participants experienced severe outcomes, including amputation and mortality.
- Life stage and social support influenced patient experiences, affecting gratitude and guilt.
Conclusions:
- The experience of PJI is profoundly shaped by losses in independence and identity, alongside significant pain and emotional burden.
- Social support is a critical factor in navigating the challenges of PJI.
- Age and life stage may influence how individuals cope with and perceive the impact of PJI.
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