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Nothing about AAC users without AAC users: a call for meaningful inclusion in research, technology development, and professional training.

Augmentative and alternative communication (Baltimore, Md. : 1985)·2025
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Unveiling underlying systemic isolation challenges for AAC users.

Grant Blasko1

  • 1Integrated Social Sciences, University of Washington, Seattle, WA, USA.

Augmentative and Alternative Communication (Baltimore, Md. : 1985)
|June 14, 2025
PubMed
Summary
This summary is machine-generated.

Systemic barriers, not just individual challenges, cause social isolation for Augmentative and Alternative Communication (AAC) users. Addressing these societal and institutional issues is crucial for enhancing connection and well-being.

Keywords:
AACinterdependenceprivacy policiessocial isolationsystemic isolation

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Area of Science:

  • Disability Studies
  • Public Health
  • Social Sciences

Background:

  • Existing research on social isolation often overlooks systemic factors.
  • Communication disabilities can lead to isolation, particularly for users of Augmentative and Alternative Communication (AAC).
  • Systemic isolation, driven by societal and institutional barriers, exacerbates exclusion.

Purpose of the Study:

  • To examine systemic factors contributing to social isolation among individuals with communication disabilities.
  • To introduce and define the concept of systemic isolation.
  • To critique current Augmentative and Alternative Communication (AAC) practices and their impact on social and emotional well-being.

Main Methods:

  • Interdisciplinary review integrating social sciences, public health, and disability studies.
  • Analysis of institutional and societal barriers affecting AAC users.
  • Examination of specific examples of systemic barriers.

Main Results:

  • Established AAC practices may not adequately address the social and emotional needs of users.
  • Systemic barriers include simplified communication, restrictive policies, limited collective support, and overemphasis on independence.
  • These barriers intensify isolation beyond the inherent challenges of communication disability.

Conclusions:

  • There is a moral imperative to address systemic isolation for AAC users.
  • Collaboration among AAC users, researchers, and providers is needed to redefine support goals.
  • Focusing on preventing isolation and enhancing relational support can foster greater connection and equitable participation.