Unveiling underlying systemic isolation challenges for AAC users

This paper examines systemic factors contributing to social isolation for people with communication disabilities, including those who could benefit from, or already rely on, Augmentative and Alternative Communication (AAC) to be heard and understood. Building on existing studies of social isolation that focus on individual risk factors, this paper introduces the concept of systemic isolation, a less recognized form of isolation exacerbated by institutional and societal barriers perpetuating exclusion. By integrating interdisciplinary perspectives from social sciences, public health, and disability studies, the paper critiques established AAC practices, arguing that they often fall short in addressing AAC users' broader social and emotional needs. Specific examples illustrate how systemic barriers work to isolate AAC users - including simplified communication systems, overly restrictive privacy policies, lack of access to collective support and problem-solving, and prioritization of independence over interdependence. These practices exacerbate isolation beyond the risks posed by communication disability alone. There is a moral imperative to address these issues. This paper encourages collaboration between AAC users, researchers, and service providers to reevaluate communication support goals with a focus on preventing isolation and enhancing relational support. The hope is to foster environments that promote greater connection, well-being, and equitable participation for AAC users.