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Access to services for autistic people across Europe
Siti Nurnadhirah Binte Mohd Ikhsan1, Rosemary Holt2, Joyce Man2
1Autism Research Centre, Department of Psychiatry, University of Cambridge, Douglas House, 18B Trumpington Road, Cambridge, CB2 8 AH, UK. si377@medschl.cam.ac.uk.
Molecular Autism
|June 14, 2025
Summary
Autistic individuals in Europe face inconsistent access to essential services like therapy and healthcare. Policy improvements are urgently needed to ensure equitable service availability for the autistic community across the continent.
Area of Science:
- Autism Spectrum Disorder Research
- Healthcare Access and Policy
- Social Services Research
Background:
- Autistic communities in Europe experience significant barriers to accessing services.
- Rising rates of autism diagnosis highlight the growing need for accessible support systems.
Purpose of the Study:
- To investigate the accessibility of various services for autistic individuals in Europe.
- To identify the reasons behind unsuccessful service access among autistic people.
- To examine age and gender-based disparities in service access.
Main Methods:
- Conducted the ACCESS-EU survey with 2322 formally diagnosed autistic individuals and family carers across the EU and UK.
- Collected data on service access, waiting times, and reasons for unsuccessful access.
- Analyzed differences based on age group and gender.
Main Results:
- Low reported access rates for services including therapy (33.38%), mental health (29.89%), and educational support (27.05%).
- Common reasons for unsuccessful access include service unavailability (23.08%), unsuitability (20.04%), long waitlists (17.42%), and unaffordability (11.80%).
- Significant variations in service access were observed across different European countries, with notable inconsistencies in Poland and the UK.
Conclusions:
- Service access for autistic individuals in Europe is highly inconsistent and requires significant policy reform.
- Improvements are needed to ensure equitable and timely access to essential services for the autistic population.
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