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Support for Care Partners and Caregivers: 2023 Summit Session 5
Kenneth Hepburn1, Joseph Gaugler2, Karen Roberto3
1Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, USA.
Engaging family caregivers in research, policy, and practice is crucial for improving dementia care. Recognizing their needs and ensuring inclusivity enhances support for both caregivers and care recipients.
Area of Science:
- Gerontology
- Public Health
- Caregiver Support
Background:
- Session 5 of the 2023 NIA National Research Summit focused on "Support for Care Partners and Caregivers" for individuals with dementia.
- The session aimed to identify gaps and opportunities in dementia caregiver support.
Purpose of the Study:
- To discuss and identify key themes and actionable strategies for enhancing support for dementia care partners and caregivers.
- To foster collaboration among researchers, advocates, policymakers, and caregivers.
Main Methods:
- Scholarly presentations on dementia caregiving.
- Discussions involving national caregiver advocates, panelists, and online attendees.
- Collaborative identification of research, practice, and policy gaps by panelists and the National Institute on Aging.
Main Results:
- Emphasis on an intersectional framework for understanding caregiving.
- Highlighting the necessity of meaningful stakeholder engagement in research.
- Recognition of the complex policy landscape influencing caregiving services and supports.
Conclusions:
- Caregivers must be integral to improving dementia care and support systems.
- Inclusivity and caregiver agency are paramount in research, policy, and practice.
- The interconnectedness of research, practice, and policy significantly impacts caregiver well-being.
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