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Family-Reported Outcomes Measures (FROMs) Screening Programs an Integral Part of Chronic Disease Management: A
Sylvie Lambert1,2, Li-Anne Audet1, Lydia Ould Brahim1
1Ingram School of Nursing, McGill University, Montreal, QC, Canada.
Cancer Control : Journal of the Moffitt Cancer Center
|June 19, 2025
Summary
Family-reported outcome measure (FROM) screening programs show promise for supporting caregivers of chronically ill patients. However, current evaluations indicate positive impacts on preparedness but not on broader outcomes like quality of life.
Area of Science:
- Health Sciences
- Nursing Research
- Psychology
Background:
- Caregivers face significant physical, psychological, and emotional challenges impacting their well-being.
- Patient-reported outcomes (PROs) are crucial in chronic disease management, highlighting a potential need for family-reported outcomes (FROs).
- Family-reported outcome measure (FROM) screening programs aim to address caregivers' needs, but their development and evaluation in chronic disease contexts require thorough examination.
Purpose of the Study:
- To conduct a scoping review to determine the extent of development and evaluation of FROM screening programs for caregivers of adults with chronic diseases.
- To identify the characteristics, interventions, and outcomes associated with existing FROM screening programs.
Main Methods:
- A comprehensive scoping review following PRISMA-ScR guidelines and Joanna Briggs Institute methods.
- Searches of four electronic databases and grey literature for studies on FROM screening programs.
- Data extraction using standardized tables and analysis via descriptive statistics and qualitative content analysis.
Main Results:
- 17 unique FROM programs described in 38 studies (1999-2024), primarily from Australia, the US, and the UK.
- Programs targeted caregivers' needs, focusing on information and patient symptom management, with nurses as primary responders.
- Follow-up interventions included resources, referrals, and discussions; proximal outcomes improved, but distal outcomes like quality of life and anxiety did not show significant positive changes.
Conclusions:
- While FROM screening programs are being developed and implemented, their impact on distal caregiver outcomes remains limited.
- Further research is needed on optimal screening timing, caregiver engagement strategies, and effective follow-up interventions.
- FROM screening holds potential for caregiver support, but more robust evaluation is necessary to demonstrate broader benefits.
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