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Ethical, Social, and Legal Issues Related to Precision Medicine in India: Challenges and Solutions
Utpal Tripura1, Ninad Vilas Nagrale, Oinam Gambhir Singh
1Department of Forensic Medicine and Toxicology, All India Institute of Medical Sciences, Kalyani, West Bengal, India.
Abstract:
Precision medicine customizes healthcare based on individual genetics, environment, and lifestyle, offering a transformative approach to treatment. It promises improved health outcomes through precise and effective interventions. However, its implementation in India presents significant ethical, social, and legal challenges. Ethical concerns include ensuring informed consent, safeguarding patient privacy, and preventing genetic discrimination, particularly in a population with varied literacy levels and health awareness. Social barriers include high costs, rural inaccessibility, and cultural resistance to genetic testing. Legally, gaps in genetic testing regulation, unclear data ownership, and expensive patented treatments pose hurdles. Overcoming these challenges requires a comprehensive strategy, including healthcare-specific data protection policies, financial subsidies for low-income groups, and stringent regulatory frameworks. Such steps can ethically integrate precision medicine into the Indian healthcare system, balancing individual rights with its vast potential benefits and fostering equitable access to this innovative medical approach.
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