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Public Involvement in a Systematic Review Project: Reporting Our Approach Using the ACTIVE Framework.

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Involving diverse public contributors in systematic reviews enhances research relevance and accessibility. Practical strategies and relationship-building are key to successful patient and public involvement in healthcare research.

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Area of Science:

  • Health Services Research
  • Systematic Review Methodology
  • Patient and Public Involvement (PPI)

Background:

  • Public involvement in research is crucial for relevance and accessibility.
  • Limited information exists on public involvement in shaping systematic reviews.
  • Need to address diversity gaps, especially from underserved communities, in public involvement.

Purpose of the Study:

  • To outline practical approaches for involving a diverse public in a systematic review.
  • To offer recommendations for enhancing future public involvement practices in research.
  • To demonstrate the feasibility and benefits of diverse public involvement in systematic reviews.

Main Methods:

  • Utilized the ACTIVE framework for reflection on public involvement.
  • Focused on an NIHR-funded systematic review investigating interventions for vaccination uptake.
  • Employed practical strategies for recruiting and engaging a diverse group of public contributors.

Main Results:

  • Public contributors were continuously involved in multiple aspects of the systematic review.
  • The involvement group played an integral role in adapting and refining the coding framework.
  • Enhanced insights were gained through diverse contributor experiences, improving the coding framework.

Conclusions:

  • Involving diverse public contributors with varied backgrounds enriches systematic reviews.
  • Investing in relationship-building and a safe environment fosters richer insights.
  • Effective public involvement is achievable and leads to research that better reflects population diversity.