A Qualitative Exploration of Support Groups for Parents of Children With Developmental Language Disorder

Parents of children with developmental language disorder (DLD) have unique support needs. While support groups have a strong evidence base, they have not been adapted for use with this population. Our goal was to explore support needs among parents of children with DLD and their perspectives on participating in a support group.

We conducted semistructured interviews with 12 caregivers of children with DLD. We asked questions about existing support needs, coping strategies, and hypothetical participation in a support group. Systematic text condensation was used to identify themes and subthemes within parent responses.

Participants reported that systemic issues (e.g., Individualized Education Program processes, insurance coverage) hindered their ability to access evaluation and treatment services for their child. They also reported informational needs, such as wanting to know more about DLD, and challenges locating trustworthy resources. Emotional support needs included mental health challenges, as well as feelings of isolation and guilt. Finally, participants expressed interest in joining support groups and identified ways in which attendance would address emotional and informational needs.

Within our sample, participants were dissatisfied with practices in evaluation and treatment for children with DLD. They wanted more information from speech-language pathologists and other service providers and described difficult emotions that accompanied raising a child with DLD. We propose that parent support groups, a flexible and low-cost option, may address these needs from parents of children with DLD.

https://doi.org/10.23641/asha.29373977.