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Family perceptions of prematurity, neurodevelopment, and early intervention: a qualitative study

Nathália de Figueiredo Silva1, Francelio Silva de Sousa Júnior2, Beatriz de Oliveira Silva2

  • 1Graduate Program in Physiotherapy, Federal University of Rio Grande Do Norte, Natal, RN, Brazil.

BMC Pediatrics
|July 8, 2025
PubMed

Insights

Family involvement is crucial for premature infants. Parents often feel insecure in the Neonatal Intensive Care Unit (NICU) and need better understanding of ongoing neurodevelopmental care post-discharge.

Area of Science:

  • Neonatal care
  • Developmental pediatrics
  • Family-centered care

Background:

  • Family involvement is vital for premature infant care.
  • Understanding family perceptions is key for effective support.
  • Early intervention requires informed parental participation.

Purpose of the Study:

  • To explore family perceptions of prematurity.
  • To understand family views on neurodevelopmental care.
  • To assess family insights on early intervention needs.

Main Methods:

  • Qualitative study using focus groups and interviews.
  • Involved family members of premature infants.
  • Utilized Bardin's Content Analysis for interpretation.

Main Results:

  • Families showed limited understanding of prematurity.
  • Insecurity was prevalent in the Neonatal Intensive Care Unit (NICU).
  • Kangaroo Care Unit did not effectively promote post-discharge autonomy.

Conclusions:

  • NICU environment can impede parental engagement.
  • Transition to home care was challenging post-Kangaroo Care Unit.
  • Outpatient follow-up revealed gaps in understanding long-term needs.
Abstract

Keywords:
Early interventionFamilyPrematurity

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