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Updated: Sep 16, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Using Supporters to Increase Participation in Qualitative Research Interviews by People With Intellectual

Sarah A Hall1, Roger J Stancliffe1, Lynda Lahti Anderson1

  • 1Institute on Community Integration, University of Minnesota, Minneapolis, Minnesota, USA.

Journal of Applied Research in Intellectual Disabilities : JARID
|July 10, 2025
PubMed
Summary

Including a chosen supporter in qualitative interviews helps individuals with intellectual disabilities share their experiences. This inclusive research method supports participants with higher support needs effectively.

Keywords:
alliesinclusive researchintellectual disabilityinterviewmethodologyqualitative research

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Area of Science:

  • Disability Studies
  • Qualitative Research Methods
  • Inclusive Research Practices

Background:

  • Effective research requires direct input from individuals with intellectual disabilities.
  • Current interview methods often exclude individuals with higher support needs.
  • Expanding research techniques is crucial for greater inclusivity.

Purpose of the Study:

  • To explore the role of support persons in facilitating interview participation for individuals with intellectual disabilities.
  • To identify factors enabling co-creation of responses during interviews.

Main Methods:

  • Qualitative analysis of interview transcripts to identify supporter roles.
  • Quantitative analysis to determine factors influencing response co-creation and turn-taking.

Main Results:

  • Supporters provided encouragement and informational assistance.
  • Supporters aided in explaining questions and co-creating answers.
  • Supporters facilitated participant expression without overpowering their voices.

Conclusions:

  • Involving participant-chosen supporters in qualitative interviews enhances inclusivity.
  • This approach can be an effective tool for including individuals with intellectual disabilities and higher support needs in research.