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Profound Autism Prevalence and Impact on Parental Caregiver Quality of Life
Purpose:
The current study aimed to examine the effects of profound autism on caregiver quality of life (QOL).
Method:
This cross-sectional study involved parental caregivers of children aged 3 to 21 years with autism spectrum disorder living in Florida. Data were collected through surveys assessing caregiver QOL across physical, psychological, and environmental domains. Linear regression analyses examined the relationship between profound autism and caregiver QOL.
Results:
The prevalence of profound autism in the sample was 22.4%. Regression analyses revealed that profound autism significantly predicted lower QOL in physical (F = 5.07, p = 0.007), psychological (F = 5.92, p = 0.003), and environmental (F = 11.01, p < 0.001) domains. Parental caregivers of children with profound autism reported substantially decreased QOL compared to those with children at other levels of autism severity.
Conclusion:
Findings indicate that profound autism is a prevalent condition and significant risk factor for reduced caregiver QOL across multiple domains. The negative impacts on physical, psychological, and environmental well-being highlight the need for targeted support services for families with children who have profound autism.
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