How Close Are We? Neuropsychologic Assessment in New-Onset Pediatric Epilepsy

Area of Science:

• Neurology
• Neuropsychology
• Pediatric Epilepsy

Background:

• Epilepsy diagnosis in children and adults is frequently accompanied by behavioral and cognitive challenges.
• Neuropsychological assessment is a recommended standard for epilepsy care but faces access barriers.
• This study investigated the frequency of neuropsychological assessment for youth with new-onset epilepsy.

Purpose of the Study:

• To determine the frequency of neuropsychological assessments for children with new-onset epilepsy.
• To identify barriers to accessing neuropsychological evaluations in pediatric epilepsy care.

Main Methods:

• Online surveys were distributed to neurologists and neuropsychologists in 2022.
• Participants were recruited through professional organizations and networks in the US and Canada.

Main Results:

• Most respondents were from academic medical centers and comprehensive epilepsy centers.
• A low percentage of pediatric epilepsy neuropsychologists were available in most practice settings.
• Both neurologists and neuropsychologists reported that assessments occurred in only 0% to 25% of new-onset pediatric epilepsy cases.
• While most neurologists recognized the value of neuropsychological assessment, some were unsure when to refer patients.

Conclusions:

• Neuropsychological assessment is not routinely performed for children with new-onset epilepsy, contrary to standard care recommendations.
• Key barriers include the limited availability of neuropsychologists, insurance issues, and difficulties in accessing care.
• Improving access to neuropsychological services is crucial for comprehensive pediatric epilepsy management.