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Risk and Protective Factors for Burnout Among Parents of Children With Complex Care Needs: Parents' Perspectives
Nathalie J S Patty1,2, Karen M van Meeteren1,3, Minke Verdonk3
1Faculty of Behavioural and Movement Sciences, Section Clinical and Family Studies, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
Parental burnout in parents of children with complex care needs stems from unique risk and protective factors. Interventions must consider personal, environmental, and societal influences for effective support.
Area of Science:
- Parental well-being and mental health
- Child development and complex care needs
- Sociology of the family
Background:
- Parental burnout arises from an imbalance between stress factors and resources.
- Parents of children with complex care needs (CCN) experience this imbalance more frequently.
- Understanding perceived risk and protective factors is crucial for targeted interventions.
Purpose of the Study:
- To explore risk and protective factors for parental burnout.
- To understand these factors from the perspective of parents of children with CCN.
Main Methods:
- Semi-structured interviews conducted with 38 parents identifying with burnout.
- Maximal variation sampling based on parental, child, and family characteristics.
- Inductive thematic analysis of interview data.
Main Results:
- Fifteen themes identified across three categories: parent-intrinsic factors, parent-environment interaction, and collective contextual impact.
- Factors such as emotional state, social support, care organization, and perceived lack of options were highlighted.
- Many factors acted as both risk and protective elements, indicating burnout's dynamic nature.
Conclusions:
- Parental burnout is linked to unique combinations of risk and protective factors.
- These factors extend beyond the individual to societal structures.
- Multisystem approaches are recommended for addressing parental burnout effectively.
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