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Updated: Sep 14, 2025

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

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A Perspective on Making "Invisible" Care Visible Through Time Use Data.

Sarah E Patterson¹, Emily M Agree², Kira Birditt¹

¹Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor, MI, USA.

Journal of Aging & Social Policy

|July 24, 2025

Summary

This summary is machine-generated.

Family caregiving for older adults, especially those with dementia, is a growing concern. Time use data can illuminate this "invisible" work, guiding future research on care and well-being.

Keywords:

Caregiving families older adults time use

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Published on: February 8, 2019

Area of Science:

Gerontology
Sociology
Public Health

Background:

The aging population and increasing prevalence of chronic diseases like dementia necessitate greater family caregiving.
Family caregiving is a critical, yet often unquantified, social issue globally.
Understanding the scope and impact of family care is essential for policy and support.

Purpose of the Study:

To review U.S. datasets containing time use data (time diaries, daily diaries, ecological momentary assessments) relevant to family caregiving.
To identify research gaps and propose future directions for studying family caregiving for older adults.
To highlight the importance of time use data in understanding the "invisible" labor of family caregivers.

Main Methods:

Literature review of U.S. datasets.
Analysis of available time use data collection methods: 24-hour time diaries (TD), daily diaries (DD), and ecological momentary assessments (EMA).
Identification of existing datasets with these time use measures.

Main Results:

Several U.S. datasets incorporating TD, DD, or EMA were identified.
These data types offer valuable insights into the daily activities and care provision of family caregivers.
Current data collection may not fully capture the nuances of caregiving or its impact on well-being.

Conclusions:

Time use data are crucial for quantifying and understanding family caregiving for older adults.
Future research should focus on charting care activities and their impact on caregiver well-being.
Expansion of data collection methods is recommended to better capture the complexities of caregiving.