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Published on: September 19, 2019
Relationship Between Affiliate Stigma, Stress and Perceived Quality of Life Among Parents of Children With Down
Shin Ying Chu1, Jaehoon Lee2, Dini Sofea Binti Zamsyari1
1Centre for Healthy Ageing and Wellness (H-CARE), Faculty of Health Sciences, Speech Sciences Programme, Universiti Kebangsaan Malaysia, Selangor, Malaysia.
Background:
To examine the relationship between affiliate stigma, stress and perceived quality of life amongst parents of children with Down syndrome (DS).
Method:
Seventy-eight parents of children with DS completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI) and Care-related Quality of Life (CarerQol) scales.
Results:
Pearson correlations revealed that parents did not feel stigmatised for having a child with DS (M = 30.51, SD = 10.47) and reported a low caregiver burden (CBI Total M = 19.73, SD = 12.72). The relatively lower caregiving burden, challenges and future barriers in the DS group explained its lesser stigma, higher quality of life and greater happiness compared to the ASD and CP groups.
Conclusion:
Healthcare professionals who provide rehabilitation services to children with DS need to be more aware of the needs of families and caregivers and educated about how to best support them.
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