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Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties
Published on: September 27, 2020
A Comprehensive Toolkit to Support Self-Report Questionnaires for Autistic Adults With Cognitive Disability
Vicky Caron1,2, Isabelle Courcy3, Isabelle Soulières1,2
1Department of Psychology, University of Quebec in Montreal, Montreal, Canada.
Objectives:
Autistic individuals with cognitive disability are underrepresented in research using self-report measures. This study aimed to develop a toolkit of customizable accommodations to facilitate self-report and to explore its usability through implementation with quality of life (QoL) questionnaires.
Methods:
A consultation process in three rounds was conducted with 10 experts in autism and/or cognitive disability to identify accommodations. The resulting accommodations were implemented with QoL questionnaires (WHOQoL-BREF-ID, WHOQoL-DIS-ID, ASQoL). Twenty-two autistic participants with cognitive disability, accompanied by a parent, completed the questionnaires. Feedback interviews explored participants' experiences with the accommodations.
Results:
Sixty-four accommodations and a cross-cutting concern: the need for a flexible protocol were retained in the toolkit. Feedback supported the usefulness of several accommodations while highlighting areas for improvement.
Conclusions:
This toolkit facilitates self-report among autistic individuals with cognitive disabilities, which is crucial for valid QoL assessments and development of relevant services.
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